Questions parents ask
Answers we've reviewed for publishing. More are on the way as each one is checked.
Getting a diagnosis
Autism is diagnosed by a specialist from your child's developmental history and direct observation; there is no blood or lab test for it.
What should I bring?
A completed CDC milestone checklist or the free Milestone Tracker app, your written questions and concerns, and any screening questionnaire your child has already done. Mention your concerns when you book the appointment (CDC, CDC milestones).
Sources: CDC, CDC milestones
Right after the diagnosis
You can start services right away: under age 3 through your state's early intervention program, and at 3 and older through your local school district. Neither needs a diagnosis or a doctor's referral to begin.
IEPs and school
An IEP is available in every state: federal special education law (IDEA) requires each state to provide one to every eligible child with a disability, ages 3 through 21.
Who can help me for free?
Federal law funds at least one Parent Training and Information Center in every state (20 U.S.C. 1471). Find yours at Find Your Parent Center.
Sources: 20 U.S.C. 1471, Find Your Parent Center
The daily work at home
Children learn most when the people around them practice the same skills all day, inside ordinary routines like meals, play, bath and bedtime.
Who looks after me?
Parents of autistic children report much higher parenting stress than other parents (Hayes and Watson, 2013). Help exists:
- Respite care: the National Respite Locator finds short breaks; start with your state's Lifespan Respite program and check each provider's background yourself.
- Another parent who's been there: Parent to Parent USA matches you with a trained support parent.
- Skills training: the WHO Caregiver Skills Training program is for families of children aged 2 to 9; no diagnosis is needed.
- If you're in crisis: call or text 988, free and confidential, any time (988 Lifeline).
Sources: Hayes and Watson, 2013, National Respite Locator, Parent to Parent USA, WHO Caregiver Skills Training, 988 Lifeline
General information, not medical or legal advice.